Science for tomorrow's neurosurgery: Patient & Public Involvement (PPI) group - Septembre 2024 group meeting

The 25th of September saw the latest meeting of “Science for Tomorrow’s Neurosurgery,” our now well established PPI group. As always, lots of exciting and valuable discussion with updates from Oscar on the (nearly complete!) NeuroHSI recruitment as well as Matt announcing the official opening of NeuroPPEYE phase 2!

Neurosurgical research at King’s is going from strength to strength, resulting in lots of exciting new opportunities for patients to get involved with. However, we are always aware that being given lots of information about different trials from different people recruiting can be burdensome for patients, especially if their first contact is receiving a difficult diagnosis or are being told they will need an operation. We discussed this concern with the group and how best to approach recruitment; this generated lots of valuable discussion, resulting in going forward with a combined trial recruitment approach within our group; yet another example of ensuring everything we do remains patient focused! Our live illustrator, Jenny Leonard was on hand to provide us with a fantastic representation of our discussion points, for which we are always grateful.

As always, a hugely positive meeting and an overall experience that has been so valuable to us, we have decided to publish it! Read more here:

MacCormac, O., Elliot, M., Whittaker, L., Bahl, A., Ségaud, S., Plowright, A.J., Winslade, S., Taylor-Gee, A., Spencer, B., Vercauteren, T. and Shapey, J., 2024. Science for tomorrow’s neurosurgery: insights on establishing a neurosurgery patient group focused on developing novel intra-operative imaging techniques. Research Involvement and Engagement, 10(1), pp.1-12. doi:10.1186/s40900-024-00649-0

If you have been diagnosed with, or treated for a brain tumour and would be interested in helping to guide cutting edge research in neurosurgery and AI please contact the NeuroHSI team or NeuroPPEye team to enquire about space in the Science for Tomorrow’s Neurosurgery PPI group.

To learn more about the project, please visit our neurohsi.uk and neuroppeye.uk pages.